Tag Archives: Parenting

Catching Teeth

Posted on May 15, 2014 by thehorseenabler

In years past, the H.J. has been neither keen nor a participant, nor a keen participant in Mother’s Day. Early on I guess it hurt my feelings — so much has happened in the intervening ten years the fact that … Continue reading →

Posted in Uncategorized | Tagged Aphasia, baby teeth, beaded necklace, disabled, epilepsy, ESES, Gentle Souls, Jewels Vine, Juniper Tea, Mother's Day, mourning locket, Parenting, Penelope Syndrome, pom pom necklace, Special Needs, Zara | Leave a comment

The Romance Reader

Posted on April 16, 2014 by thehorseenabler

Monday it snowed and it was beautiful. Tuesday, by 8:30am, it was already 45+ degrees (Fahrenheit), so the H.J. (my Hirsute Japanese) and I planted. I love gardening; I love the act of digging in the dirt and dead-heading. I … Continue reading →

Posted in Uncategorized | Tagged Aphasia, contentment, CSWS, developmental disabilities, Diana Vreeland, disabled, epilepsy, ESES, garden, garden in hell, Parenting, Penelope Syndrome, Penny Reid, Pinterest, romance novels, Special Needs, success, Tasha Tudor | Leave a comment

Little Angel 420

Posted on April 11, 2014 by thehorseenabler

February 3, 2014 we started the Little Angel on Charlotte’s Web, a medicinal marijuana developed for children with epilepsy. It is a very specific strain without THC (the psychoreactive — that’s what makes you high) and with increased CBD (cannabidiol, … Continue reading →

Posted in Uncategorized | Tagged anti-convulsant, cannabidiol, CBD, Charlotte's Web, Colorado Springs, Continuous Spikes and Waves during Sleep, CSWS, disabled, disabled child, dosage, Dravet, Dravet Syndrome, Encephalopathy Status Epilepticus during Sleep, epilepsy, ESES, Exceptional Needs, handicapped, how to enroll a child in Colorado MMR, Joel Stanley, Lying Awake, Mark Salzman, Medical Marijuana Registry, myoclonic, Parenting, pediatric epilepsy, Realm of Caring, red card, seizures, Special Needs, Special Needs parenting, Stanley brothers, THC, The Realm of Caring | Leave a comment

Paying for “professionals”‘ messes, again

Posted on December 9, 2013 by thehorseenabler

As the Little Angel’s mother, I really need the professionals in our lives to do their jobs, do them fully, and do them correctly. Repeatedly I feel let down by them, and I just don’t know what to do. I … Continue reading →

Posted in Uncategorized | Tagged developmental disabilities, disabled, hospital bed, Medicaid, Parenting, pediatric wheelchair, Special Needs, Special Needs bed, Special Needs parenting, stupid husband, Waiver | Leave a comment

The Sweetest Sound

Posted on November 22, 2013 by thehorseenabler

The H.J. and I are sitting in the breakfast nook, he noodling around in his bicycling forum and I noodling around in my Hmong textile search, listening to the absolute sweetest sound. The Big Angel is upstairs, either getting ready … Continue reading →

Posted in Uncategorized | Tagged love, Parenting | Leave a comment

Day In, Day Out, Chubby Cheeks and Curly Hair Fill My Heart

Posted on October 12, 2013 by thehorseenabler

Little Angel had an MRI (of his brain) today and before we’d even returned home his neurologist had e-mailed me letting me know the results were GOOD. He is a freaking champion. He requires general anesthesia so can’t eat anything … Continue reading →

Posted in Uncategorized | Tagged Aphasia, atheism, atheist, Breast Cancer, Continuous Spike Wave during Slow Sleep, CSWS, Disability, disabled, Five Stages of Grief, Kubler-Ross, Medical Enigma, Parenting, Parkinson's, Sensory Processing Disorder, SPD, Special Needs, Tempura, Vengeful god | 1 Comment

It’s been a stressful week, hopefully ending on a smoother note. Something is going on with Little Angel; for the past fortnight every afternoon he has an hours-long epic meltdown – loud, crazy, frantic screaming and crying. He’s clearly in … Continue reading →

Posted on July 13, 2013 by thehorseenabler | Leave a comment

Es un milagro

Posted on June 24, 2013 by thehorseenabler

I’ve been in such a pissy mood lately that I’ve been thinking of renaming this blog “Fuck You, Idiots” but I’m pretty sure that would defeat the purpose of doing this online internal exercise in finding happiness … ahem. Obliquely … Continue reading →

Posted in Uncategorized | Tagged Angels, Blindsight, disabled, Dyspraxia, ESES, Hippotherapy, Idiots, Nutella, Parenting, Penelope Syndrome, Sensory Processing Disorder, SPD, Special Needs, volunteer | Leave a comment