Tag Archives: disabled
sweetest thoughts
Tomorrow is the first day of school for my children. The Big Angel will be in the fifth grade, and here that means his final year of elementary school; Little Angel will be in the third grade, and providence has … Continue reading
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Tagged anti-convulsant, Aphasia, cognitive disability, Continuous Spike Wave during Slow Sleep, Continuous Spikes and Waves during Sleep, developmental disabilities, Disability, disabled, disabled child, Encephalopathy Status Epilepticus during Sleep, epilepsy, epileptologist, ESES, Exceptional Needs, family, Fuchsia, global developmental delay, handicapped, inclusive, introspection, Kindness, love, Medical Enigma, neurologist, nonverbal, pediatric epilepsy, pediatric epileptologist, pediatric neurologist, pediatric wheelchair, seizures, Special Education, special families, Special Needs, Special Needs parenting, subclinical status epilepticus
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lingua franca
Yesterday I sat in the pavilion watching Little Angel have his SLP hippotherapy. He rides the sweetest little Norwegian Fjord. Another woman, a volunteer, was also in the pavilion, finishing her lunch. She asked me for how long the Little … Continue reading
Catching Teeth
In years past, the H.J. has been neither keen nor a participant, nor a keen participant in Mother’s Day. Early on I guess it hurt my feelings — so much has happened in the intervening ten years the fact that … Continue reading
The Romance Reader
Monday it snowed and it was beautiful. Tuesday, by 8:30am, it was already 45+ degrees (Fahrenheit), so the H.J. (my Hirsute Japanese) and I planted. I love gardening; I love the act of digging in the dirt and dead-heading. I … Continue reading
I’m a nurse!
Late last year the state alerted us that Little Angel requires, according to it and its diagnostic tools, licensed skill care ’round the clock. The state likes it if the primary caregiver can go to school to become licensed and … Continue reading
Expressions of the Year
Earlier this year we all discussed at the dinner table what our mottos for 2014 would be. The H.J. has decided to retain his motto of 2013, “Suck it up!” My new motto is “Please do not make more work … Continue reading
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Tagged Aphasia, Bruno curved stair lift, cognitive disability, curved stair lift, developmental disabilities, disabled, global developmental delay, hypotonia, low frequency, Medicaid, Medicaid frustration, Precision curved stair lift, Sensory Integration Disorder, Sensory Processing Disorder, SPD, Special Needs, stair lift, stair lift restraint, Stannah curved stair lift, Sterling curved stair lift, TKAccess curved stair lift
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Year of the Horse
Yesterday I got to go to Costco for the first time in 2014, and I was ecstatic: six heads of romaine (we all love salad), gallon-sized container of mango smoothie (used as delivery for one of Little Angel’s meds), huge … Continue reading
Paying for “professionals”‘ messes, again
As the Little Angel’s mother, I really need the professionals in our lives to do their jobs, do them fully, and do them correctly. Repeatedly I feel let down by them, and I just don’t know what to do. I … Continue reading
Day In, Day Out, Chubby Cheeks and Curly Hair Fill My Heart
Little Angel had an MRI (of his brain) today and before we’d even returned home his neurologist had e-mailed me letting me know the results were GOOD. He is a freaking champion. He requires general anesthesia so can’t eat anything … Continue reading
the horse enabler 