Tag Archives: epilepsy

Thank you, Feist

We are so wicked lucky. We live in a developed democratic nation with access to the world’s finest healthcare (for which we pay, but it’s right here). We have indoor plumbing (in our house alone we have five full bathrooms, … Continue reading

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sweetest thoughts

Tomorrow is the first day of school for my children. The Big Angel will be in the fifth grade, and here that means his final year of elementary school; Little Angel will be in the third grade, and providence has … Continue reading

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Catching Teeth

In years past, the H.J. has been neither keen nor a participant, nor a keen participant in Mother’s Day. Early on I guess it hurt my feelings — so much has happened in the intervening ten years the fact that … Continue reading

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The Romance Reader

Monday it snowed and it was beautiful. Tuesday, by 8:30am, it was already 45+ degrees (Fahrenheit), so the H.J. (my Hirsute Japanese) and I planted. I love gardening; I love the act of digging in the dirt and dead-heading. I … Continue reading

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Little Angel 420

February 3, 2014 we started the Little Angel on Charlotte’s Web, a medicinal marijuana developed for children with epilepsy. It is a very specific strain without THC (the psychoreactive — that’s what makes you high) and with increased CBD (cannabidiol, … Continue reading

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Jonathan Livingston Elk

The Little Angel has something called Penelope Syndrome, Encephalopathy Status Epilepticus during Slow Sleep (ESES). It is a kind of epilepsy with seizures lasting ~ten hours each night while he sleeps, and only while he sleeps. Seizures of that duration … Continue reading

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