Tag Archives: developmental disabilities
merry-go-round
I kinda lost my shit last night with the Little Angel. He is, of course, adorable and sweet. He doesn’t have a willful bone in his body; his brain is incapable of emotional manipulation. He is utterly guileless. I know … Continue reading
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Tagged ADLs, Aphasia, caregiver fatigue, developmental disabilities, hypotonia, Special Needs parenting
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Wonder of wonders, miracle of miracles
It’s all Fiddler ’round here because I am thinking a lot of Wonder of wonders, miracle of miracles: Little Angel’s stair lift arrived! It was installed the week before Halloween and it was either the best Trick or the best … Continue reading
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Tagged David Luiz, developmental disabilities, drool bandana, drool bib, Easi-Lift, Fiddler on the Roof, Hawle, Precision stair lift, Sensory Integration Disorder, Sensory Processing Disorder, SID, Smirthwaite, SPD, Special Needs, special needs bandana, special needs bib, Special Needs changing table, stair chair, stair lift, Sweedie Kids
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sweetest thoughts
Tomorrow is the first day of school for my children. The Big Angel will be in the fifth grade, and here that means his final year of elementary school; Little Angel will be in the third grade, and providence has … Continue reading
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Tagged anti-convulsant, Aphasia, cognitive disability, Continuous Spike Wave during Slow Sleep, Continuous Spikes and Waves during Sleep, developmental disabilities, Disability, disabled, disabled child, Encephalopathy Status Epilepticus during Sleep, epilepsy, epileptologist, ESES, Exceptional Needs, family, Fuchsia, global developmental delay, handicapped, inclusive, introspection, Kindness, love, Medical Enigma, neurologist, nonverbal, pediatric epilepsy, pediatric epileptologist, pediatric neurologist, pediatric wheelchair, seizures, Special Education, special families, Special Needs, Special Needs parenting, subclinical status epilepticus
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lingua franca
Yesterday I sat in the pavilion watching Little Angel have his SLP hippotherapy. He rides the sweetest little Norwegian Fjord. Another woman, a volunteer, was also in the pavilion, finishing her lunch. She asked me for how long the Little … Continue reading
The Romance Reader
Monday it snowed and it was beautiful. Tuesday, by 8:30am, it was already 45+ degrees (Fahrenheit), so the H.J. (my Hirsute Japanese) and I planted. I love gardening; I love the act of digging in the dirt and dead-heading. I … Continue reading
I’m a nurse!
Late last year the state alerted us that Little Angel requires, according to it and its diagnostic tools, licensed skill care ’round the clock. The state likes it if the primary caregiver can go to school to become licensed and … Continue reading
Expressions of the Year
Earlier this year we all discussed at the dinner table what our mottos for 2014 would be. The H.J. has decided to retain his motto of 2013, “Suck it up!” My new motto is “Please do not make more work … Continue reading
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Tagged Aphasia, Bruno curved stair lift, cognitive disability, curved stair lift, developmental disabilities, disabled, global developmental delay, hypotonia, low frequency, Medicaid, Medicaid frustration, Precision curved stair lift, Sensory Integration Disorder, Sensory Processing Disorder, SPD, Special Needs, stair lift, stair lift restraint, Stannah curved stair lift, Sterling curved stair lift, TKAccess curved stair lift
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Paying for “professionals”‘ messes, again
As the Little Angel’s mother, I really need the professionals in our lives to do their jobs, do them fully, and do them correctly. Repeatedly I feel let down by them, and I just don’t know what to do. I … Continue reading
J’adore the F word and here’s why
courtesy of the sublime Jimmy Marble It is no secret I speak many languages, including foul language; it may, in fact, be my favorite of all. While I am exceedingly uptight about offensive language, as in words with racist / … Continue reading
Edible Bean Box
Little Angel, who is practically seven and a half years-old, doesn’t exactly still explore the world through his mouth … but close. He doesn’t have pica, but he has pica-like behaviors. One of his educational team was telling me how … Continue reading
the horse enabler 